HepTREC

Links

This page contains links to various national and regional resources with ties to hepatitis. Also included are resources for patients and families as well as links to local health departments. Click on the names of the organizations to be directed to their websites.

National Resources

Centers for Disease Control and Prevention (CDC), Immunization and Vaccination

800-232-4636 (English and Spanish). Email them by clicking here. The national authority for hepatitis information: epidemiology, disease facts, prevention, scientific studies, national recommendations, and more.

Centers for Disease Control and Prevention (CDC), Hepatitis Branch

404-718-8506 The national authority for hepatitis information: epidemiology, disease facts, prevention, scientific studies, national recommendations, and more.

National Alliance for State and Territorial AIDS Directors

444 N. Capitol Street NW, Suite 339, Washington, DC 20001, 202-434-8090(phone), 202-434-8092(fax). Email by clicking here. NASTAD represents the nation's chief state health agency staff who administer AIDS health care, prevention, education and support services funded by state and federal governments.

National Center for Complementary and Alternative Medicine (NCCAM)

9000 Rockvile Pike, Bethesda, MD 20892. 1-888-644-6226. Email by clicking here. Sponsored by the National Institutes of Health, this site contains databases galore and research on alternative therapies.

National Library of Medicine

U.S. National Library of Medicine 8600 Rockville Pike Bethesda, MD 20894 The world's largest medical library available to the publc for on-line health research.

US Food and Drug Administration

10903 New Hampshire Ave, Silving Spring, MD 20993. 1-888-INFO-FDA (1-888-463-6332) The FDA's mission is to promote and protect the public health by helping safe and effective products reach the market in a timely way, and monitoring products for continued safety after they are in use. Our work is a blending of law and science aimed at protecting consumers.

Veterans Benefits Administration

VA Benefits (national office) 1-800-827-1000. The Department of Veterans Affairs seeks to meet the needs of the Nation's veterans.

Regional Resources

AIDS Library of Philadelphia

The AIDS Library serves the community through delivery of information on HIV, such as treatments, nutrition, and history of the pandemic, and referrals to regional and national resources. This information is provided through a variety of media including books, periodicals, medical journals, videos, audio cassettes, cd-rom, and the Internet. All materials may be viewed in the comfort of the library and most books and videos may be loaned to those with a free AIDS Library borrower card. 1233 Locust Street, 2nd Floor Philadelphia, PA 19107 Telephone: 215-985-4851 Fax: 215-985-4492

Hepatitis C Support Project(HCSP)

HCSP's mission is to provide unbiased information, support, and advocacy to all communities affected by HCV, HIV/HCV confection including medical providers. Resources en Español.

Immunization Action Coalition (IAC)

651-647-9009 Comprehensive resource of practical immunization and information health care providers can use. "IAC Express" is a free email announcement service.

Philadelphia Firefighters

Philadelphia firefighters union homepage. Link to hepatitis-related information and activities

Philadelphia Region Veterans Affairs

5000 Wissahickon Ave. Philadelphia, PA 19144-4867 Link to the VA Regional Office and Insurance Center in Philadelphia, PA

Resources for Patients & Families

American Liver Foundation (ALF) Delaware Valley Chapter

1341 North Delaware Ave, Suite 209, Philadelphia, PA 19124 Phone: (215) 424-8080. This web site provides information about all forms of liver diseases, including viral hepatitis. It provides information about patient support groups and programs, links to chapters across the nation, and liver-related advocacy.

Be In Charge

Information and Enrollment: 888-437-2608. Be In Charge offers personal support for patients with chronic hepatitis C in the Be In Charge program. This free service offers 24/7 toll-free telephone access to a nurse to help with coping with side effects, as well as understand your therapy to a greater degree so you can talk easily with your doctor.

Bristol-Myers Squibb Patient Assistance Programs

Information: 1-888-281-8981. Bristol-Myers Squibb is a pharmaceutical company that produces Baraclude (for treatment of hepatitis B) among other medications. The link above will direct you to their patient assistance programs to help with the cost of their medications.

Genentech Access Solutions

Information: 1-866-4-ACCESS. Genentech is a pharmaceutical company that produces Pegasys, a type of interferon, used in combination treatment of hepatitis C. Access Solutions is their patient assistance program which can help qualified individuals with the cost of their medications.

Gilead U.S. Advancing Access

Information: 1-800-226-2056. Advancing Access is Gilead's patient assistance program used to help patients with the cost of their medications. Gilead produces Viread and Hepsera (drugs used to treat hepatitis B) in addition to other medications.

Hepatitis B Foundation

3805 Old Easton Rd, Doylestown, PA 18902. 215-489-4900 , 215-489-4313(fax), info@hepb.org A website dedicated solely to hepatitis B. Provides facts, useful advice, new drug information, liver specialist directory, and a responsive email "info-line". Information in Chinese(simplified & tradtional), Korean, Spanish and Vietnamese.

Hep C Connection

1-800-522-4372 info@hepc-connection.org. Comprehensive information to assist hep C-challenged individuals and their families.

Hepatitis-Central

An on-line hepatitis encyclopedia. Over 2,000 pages, searchable by keyword.

Hepatitis Foundation International (HFI)

504 Blick Drive, Silving Spring, MD 20904. 1-800-891-0707, info@hepatitisfoundation.org. Information about viral hepatitis, support groups, research articles, and education programs.

Hepatitis Neighborhood

Offers information and news on viral hepatitis. Features a Town Hall with a Live Speakers Forum of hepatitis experts. Sponsored by CuraScript, a nationwide specialty pharmacy.

HIV and Hepatitis.Com

584 Castro Street #272, San Francisco, CA 94114. This site provides HCV,HBV, HIV/AIDS and other health news stories. Their goal is to provide "accurate, timely and cutting-edge information" about treatment for these conditions.

Merck Helps

Information: 1-800-727-5400. Merck is a pharmaceutical company that produces a variety of medications including Victrelis, a protease inhibitor and PegIntron, a type of interferon, used in combination therapy to treat hepatitis C. Merck Helps is the name of their patient assistance program and can help qualified individuals with the cost of medication.

Novartis Patient Assistance Program

Information: 1-800-277-2254. Novartis is a pharmaceutical company that produces Tyzeka (for treatment of hepatitis B) among other medications. The link above will direct you to their patient assistance programs to help with the cost of their medications.

Vertex GPS (Guidance & Patient Support)

Information: 1-855-837-8394. Vertex is a pharmaceutical company that produces Incivek, a medication (protease inhibitor) used as part of combination therapy for hepatitis C. Vertex GPS is their patient assistance program that provides information and support as well as options to help with the cost of the medication.

Professional Organizations

American Association for the Study of Liver Diseases (AASLD)

1001 North Fairfax Street, Suite 400 Alexandria, VA 22314 Phone: 703-299-9766 Fax: 703-299-9622 The American Association for the Study of Liver Diseases is a nonprofit, member organization meeting the educational and scientific needs of nearly 2,300 physicians, researchers, and scientists worldwide. To assist hepatologists in their medical and research careers, AASLD provides a variety of services from Continuing Medical Education (CME) to the opportunity to present and discuss their research.

The American Gastroenterology Association

American Gastroenterological Association 4930 Del Ray Avenue, Bethesda, MD 20814 Phone: (301) 654-2055 Fax: (301) 654-5920 or Email member@gastro.org Membership is limited to physicians, researchers and/or educators whose primary practice, research and/or teaching involves the functions and disorders of the digestive system.

State and Local Public Health Departments

Atlantic County, NJ

Bucks County, PA

Burlington County, NJ

Camden County, NJ

Cape May County, NJ

Chester County, PA

Cumberland County, NJ

Delaware County, PA

Delaware Department of Health and Social Services

Gloucester County, NJ

Montgomery County, PA

New Castle County, DE

New Jersey Department of Health and Senior Services

Ocean County, NJ

Pennsylvania Department of Health

Philadelphia County, PA

Salem County, NJ

Sussex County, DE